Kun lääkärikään ei saa mitään apua

Avasin ketjun http://keskustelu.suomi24.fi/node/8966015/thread , johon liitin linkkisivun http://www.curenaturalicancro.com/fungus-links.html .

Linkkisivulta kohdasta "Fungi and Disease" pääsin tänne http://www.nutramed.com/Fungi/reflections_on_an_illness.htm ja sieltä tänne http://www.nutramed.com/Fungi/blastomycosis_story.htm .

*

Hurjaa luettavaa. Siinähän lääkäri kertoo, kuinka hän ei saanut kollegoiltaan mitään apua sairastuessaan ja pettyi hoitoon:

"The medical care I received was disappointing. I am concerned for others who develop this infection. It is unlikely that they will be diagnosed."

[Saamani lääkärinhoito oli pettymys. Olen huolestunut muista, jotka saavat tämän infektion. On epätodennäköistä, että he saavat diagnoosin.]

12

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    Anonyymi (Kirjaudu / Rekisteröidy)
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    • Lainaus:

      Inhaled fungal spores can infect the lungs and spread to other parts of the body. Blastomycosis is one fungus that grows inside the body in yeast form. These yeast cells can cause severe, invasive infection that is sometimes fatal because the diagnosis is not made and effective treatment is not prescribed. The yeast cells spread like cancer cells through the blood stream and can grow in every body tissue.

      I had the dubious opportunity of studying fungal lung infection when I contracted the disease in the summer of 2006. My symptoms -- chest pain, fever, fatigue, shortness of breath and weight loss -- progressed slowly over several weeks. I knew I had an unfamiliar and serious kind of infection that felt increasingly life threatening. Throat swab culture and sputum culture did not reveal the identity of the infection and anti-bacterial antibiotics were not helpful.

      http://www.nutramed.com/Fungi/blastomycosis_story.htm

    • Lainaus:

      [Pohdintoja epätavallisesta sairaudesta]

      Reflections on an Uncommon Illness

      Stephen Gislason MD

      All of us become ill and sooner or later a major life-threatening illness arrives without warning and everything changes. I have been lucky to have illnesses that either resolved on their own or that I managed by careful adjustments to the food I eat. I developed gluten "allergy" expressed as digestive symptoms and arthritis and general debility when I was 38 years old. I discovered a whole new approach to medical therapeutics that few of my colleagues appreciated. Among my self-management strategies is taking a food holiday when something really bad happens. This is an ancient healing method that has worked well for me over the past 25 years. My experience with food related disease became a new level of truth that I have described in detail in books and on other centers at this website.

      In the summer of 2006, I became ill; slowly and progressively. All my self-help strategies failed to rescue me. The illness felt like an infection, but it was unfamiliar and did not resolve on its own. For several weeks, I did not recognize the pattern of illness and was alarmed by its inexorable progression. I have detailed the story of the infection in My Blastomycosis Story. I wanted on this page to reflect on some of the important things I learned.

      1. Once again, I learned about the limitations of my knowledge. I knew something about allergy to fungal spores, but almost nothing about airborne fungal infections. I was highly motivated to discover and learn but at least two medical colleagues I consulted were not. The first doctor I consulted after I made the diagnosis was helpful and admitted quite correctly that he knew nothing about the infection. I discovered that in my town both medical clinics had no lab facility and no microscopes. All their lab work was sent out and the MDs dealt only with lab reports and prescription pads. None of the doctors had the curiosity and tools that are required by scientists. I have always had the microscope that I carried with me since medical school and used in clinical practice for many years. My lab microscope was more sophisticated and allowed me to take good photomicrographs. For many years I was interested in marine biology and studied plankton samples at every opportunity. I was used to preparing samples so that I could observe living organisms. It was natural for me to collect my own sputum and look for the infecting organism. It took several weeks to correctly identify the yeast form of the fungus that infected me and over time I got to know the little beasts quite well. Three years have elapsed since I made the discovery and the infecting cells are still with me, despite prolonged antifungal therapy. I now better appreciate that there are a growing list of chronic infections that plague humans and resist cure.

      I have described elsewhere the problems of technical medicine. MDs tend to live in a world of abstractions; real people become pieces of paper that show words and numbers as data. It is easy for MDs to ignore the real person and deal only with the data. I was taught to treat the patient and not the lab result.

      2. I became alarmed that other people who may develop an unusual infection like mine would not be diagnosed and treated properly. Two women physicians I saw as consultants were remarkably callous and dogmatic...not my idea of good doctors. They knew little or nothing about the infection and denied its existence in my area. They renewed my interest in examining medical methods and the failure of infection surveillance infrastructures to respond quickly and appropriately.

      3. I tried arrange definitive identification of the fungus that I observed but encountered remarkable resistance. Two female mycologists (not MDs) I consulted were reluctant to consider new evidence and did not help me confirm the identity of my infecting fungus. I had the incorrect idea that experts in the public employ would be curious and eager to help. One stated that blastomycosis has never been reported in BC, therefore it does not occur. The other woman participated in studying another fungal infection that appeared for the first time in BC a few years ago (Cryptococcus gatti). Perhaps there is an unspoken understanding that you can only discover one new fungal infection in British Columbia. In part, the reluctance to help comes from technical limitations - there are no quick and easy tests that provide definitive results. My research was preliminary and should be pursued by a well-equipped mycology research laboratory.

      [jatkuu]

      http://www.nutramed.com/Fungi/reflections_on_an_illness.htm

      • Lainaus jatkuu:


        Eventually, I consulted many MDs who denied that I had the infection. After a consultation with an infectious disease specialist who said he couldn't identify what organism was present in my slide culture or photomicrographs, I wrote to him: I am going to stop calling my fungal infection blastomycosis and refer instead to BC fungus G2X19. I have studied BC fungus G2X19 in detail over the past 2 years and regret that the other MDs I have encountered are not even curious enough to discuss this with me. They have confirmed my view that physicians are technicians and not scientists. BC fungus G2X19 resembles blastomycosis and my history of illness is consistent with many reports in the literature. Most of the features of my illness in the past 2 years can be explained by infection with BC fungus G2X19: this included the initial presentation which was alarming; the favorable response to itraconazole treatment; the recurrences when itraconazole was stopped; the pleural effusion that occurred a year later when granulomas( indicating fungal infection) were seen on CAT scans of my right lung and my liver; the infection continues to this day, but is controlled by daily doses of itraconazole.

        4 The augment that "it has never occurred before" is typical of human assumptions that lead to error. The argument that you cannot have a disease that is uncommon is also spurious. Our attitude toward infection detection and reporting needs an overhaul. See Infection Surveillance.

        5. Medical doctors receive a lot of information about anonymous groups of people, but they care for individuals that they know personally. They have difficulty moving from anonymous generalities to individual patients.

        6. Another spurious argument that both female physicians pursued is that a physician should not make his own diagnosis and prescribe treatment for himself. I have spent the past 25 years advocating self care for every intelligent person, including myself. Without intelligent self-care most sick people will find themselves in a limbo with inadequate information and little or no supervision. Brief visits to a busy doctor are not adequate to manage the chronic diseases that are now most prevalent. The first physician I saw, an internist, was very strong in her condemnation of self care, but when it came time to make a follow-up appointment with her, she said it wasn't necessary. She advised stopping the anti-fungal agent that had improved my condition, but when I asked her what I should do if I got sicker, she stated that I should go the emergency room of a hospital. In other words, this physician did not offer continuity of care and would not assume responsibility for the careless advice she was giving me. I would have appreciated a compassionate, knowledgeable physician who would assume my care, but none was available.

        7. I have learned that disappointment is inevitable when you interact with others. Human performance always leaves a lot of room for improvement. My goal is to learn from disappointments. The first challenge is to improve your own performance so that you can realistically expect better from others. This is not easy. The second goal is to study failures and to learn from them.

        http://www.nutramed.com/Fungi/reflections_on_an_illness.htm


      • sivusta seurannut
        sanasinko kirjoitti:

        Lainaus jatkuu:


        Eventually, I consulted many MDs who denied that I had the infection. After a consultation with an infectious disease specialist who said he couldn't identify what organism was present in my slide culture or photomicrographs, I wrote to him: I am going to stop calling my fungal infection blastomycosis and refer instead to BC fungus G2X19. I have studied BC fungus G2X19 in detail over the past 2 years and regret that the other MDs I have encountered are not even curious enough to discuss this with me. They have confirmed my view that physicians are technicians and not scientists. BC fungus G2X19 resembles blastomycosis and my history of illness is consistent with many reports in the literature. Most of the features of my illness in the past 2 years can be explained by infection with BC fungus G2X19: this included the initial presentation which was alarming; the favorable response to itraconazole treatment; the recurrences when itraconazole was stopped; the pleural effusion that occurred a year later when granulomas( indicating fungal infection) were seen on CAT scans of my right lung and my liver; the infection continues to this day, but is controlled by daily doses of itraconazole.

        4 The augment that "it has never occurred before" is typical of human assumptions that lead to error. The argument that you cannot have a disease that is uncommon is also spurious. Our attitude toward infection detection and reporting needs an overhaul. See Infection Surveillance.

        5. Medical doctors receive a lot of information about anonymous groups of people, but they care for individuals that they know personally. They have difficulty moving from anonymous generalities to individual patients.

        6. Another spurious argument that both female physicians pursued is that a physician should not make his own diagnosis and prescribe treatment for himself. I have spent the past 25 years advocating self care for every intelligent person, including myself. Without intelligent self-care most sick people will find themselves in a limbo with inadequate information and little or no supervision. Brief visits to a busy doctor are not adequate to manage the chronic diseases that are now most prevalent. The first physician I saw, an internist, was very strong in her condemnation of self care, but when it came time to make a follow-up appointment with her, she said it wasn't necessary. She advised stopping the anti-fungal agent that had improved my condition, but when I asked her what I should do if I got sicker, she stated that I should go the emergency room of a hospital. In other words, this physician did not offer continuity of care and would not assume responsibility for the careless advice she was giving me. I would have appreciated a compassionate, knowledgeable physician who would assume my care, but none was available.

        7. I have learned that disappointment is inevitable when you interact with others. Human performance always leaves a lot of room for improvement. My goal is to learn from disappointments. The first challenge is to improve your own performance so that you can realistically expect better from others. This is not easy. The second goal is to study failures and to learn from them.

        http://www.nutramed.com/Fungi/reflections_on_an_illness.htm

        Kyllä linkit riittäisivät - eikös floodaaminen ole kiellettyä täällä?

        Parikymmentä vuotta sitten tuttuni sai sieni-infektion keuhkoihinsa, todennäköisesti pöyhittyään kompostia. Kompostiin oli laitettu mm. hevosenlantaa, kuivikeolkia ja heiniä. Niissä kasvaa runsaasti Aspergillus- ym. sieniä. Tuttuni oli ennestään myös voimakkaasti allerginen esim. pujolle.
        Hän meni hyvin huonoon kuntoon, oireet samantyyppisiä kuin tuossa lääkärin tapauksessa.
        Tuttuni oli lopulta tutkittavana Paimion keuhkosairaalassa. Siellä todettiin keuhkoaspergilloosi. Sienen vasta-aineita oli runsaasti veressä.
        Röntgenkuvissa näkyi tiivistymä keuhkoissa, todennäköisesti kapseloitunut sienipesäke tms.
        Sitä hoidettiin kuukausia vahvalla kortisonilla. Lopulta varjostuma oli kadonnut.
        Nyt en jaksa muistaa, saiko muuta hoitoa/lääkitystä kuin tuon kortisonin. Alussa tietysti kaikenmaailmaan antibiootteja, antihistamiinia ym, mutta ei niistä ollut apua


      • sivusta seurannut kirjoitti:

        Kyllä linkit riittäisivät - eikös floodaaminen ole kiellettyä täällä?

        Parikymmentä vuotta sitten tuttuni sai sieni-infektion keuhkoihinsa, todennäköisesti pöyhittyään kompostia. Kompostiin oli laitettu mm. hevosenlantaa, kuivikeolkia ja heiniä. Niissä kasvaa runsaasti Aspergillus- ym. sieniä. Tuttuni oli ennestään myös voimakkaasti allerginen esim. pujolle.
        Hän meni hyvin huonoon kuntoon, oireet samantyyppisiä kuin tuossa lääkärin tapauksessa.
        Tuttuni oli lopulta tutkittavana Paimion keuhkosairaalassa. Siellä todettiin keuhkoaspergilloosi. Sienen vasta-aineita oli runsaasti veressä.
        Röntgenkuvissa näkyi tiivistymä keuhkoissa, todennäköisesti kapseloitunut sienipesäke tms.
        Sitä hoidettiin kuukausia vahvalla kortisonilla. Lopulta varjostuma oli kadonnut.
        Nyt en jaksa muistaa, saiko muuta hoitoa/lääkitystä kuin tuon kortisonin. Alussa tietysti kaikenmaailmaan antibiootteja, antihistamiinia ym, mutta ei niistä ollut apua

        Etsiessäni Vertti-Eetun ja Homeherkän alkuvääntöjä törmäsin tällaiseen ketjuun.



    • Ajatelkaa, mitä lääkäri sanoo kollegoistaan:

      "Lopulta konsultoin monia lääkäreitä, jotka kielsivät, että minulla oli infektio."

      [Eventually, I consulted many MDs who denied that I had the infection.]

      http://www.nutramed.com/Fungi/reflections_on_an_illness.htm

      - Kun törmäsin avaukseeni ja tuohon juttuun uudestaan, päätin alkaa kääntää sitä, on tuossa vaan sen verran painavaa kritiikkiä.

      • "Kun törmäsin avaukseeni ja tuohon juttuun uudestaan, päätin alkaa kääntää sitä, on tuossa vaan sen verran painavaa kritiikkiä."

        - Olipa aika urakka. Vaikeaa kääntää sujuvaksi suomeksi tarkkuutta menettämättä:

        http://www.sanasinko.net/viewtopic.php?p=5152#5152

        Kollegat kiistivät sieni-infektion olemassaolon.


      • sanasinko kirjoitti:

        "Kun törmäsin avaukseeni ja tuohon juttuun uudestaan, päätin alkaa kääntää sitä, on tuossa vaan sen verran painavaa kritiikkiä."

        - Olipa aika urakka. Vaikeaa kääntää sujuvaksi suomeksi tarkkuutta menettämättä:

        http://www.sanasinko.net/viewtopic.php?p=5152#5152

        Kollegat kiistivät sieni-infektion olemassaolon.

        "Kollegat kiistivät sieni-infektion olemassaolon."

        - Olen jo vähän miettinyt, pitäisikö hommata oma mikroskooppi...

        Lainaus:

        "Huomasin, ettei kotikaupunkini kummassakaan lääkäriasemassa ollut laboratoriota eikä mikroskooppeja. Kaikki näiden laboratoriotutkimukset lähetettiin muualle ja lääkärit olivat tekemisissä ainoastaan tutkimustulosten ja lääke-ehdotusten kanssa. Yhdelläkään lääkärillä ei ollut tieteilijöiltä vaadittavaa uteliaisuutta ja työkaluja. Minulla on aina ollut mikroskooppi, jota olen kantanut lääkärikoulutuksesta lähtien mukanani ja käyttänyt kliinisessä praktiikassa useiden vuosien ajan. Laboratoriomikroskooppini oli kehittyneempi ja mahdollisti hyvien mikroskooppikuvien ottamisen. Useita vuosia olin kiinnostunut meribiologiasta ja tutkin planktonnäytteitä aina tilaisuuden tullen. Olin tottunut valmistelemaan näytteitä niin, että voisin tarkkailla eläviä organismeja. Minulle oli luonnollista kerätä omaa ysköstäni ja etsiä infektoivaa organismia. Kesti useita viikkoja tunnistaa oikein hiivamuodossa oleva sieni, joka infektoi minut, ja ajan kuluessa opin tuntemaan pikkupedot aika hyvin. Kolme vuotta oli kulunut, kunnes huomasin kärsiväni vieläkin infektoituneista soluista huolimatta pitkittyneestä sienilääkityksestä. Ymmärrän nyt paremmin, että on olemassa kasvava määrä kroonisia infektioita, jotka vitsaavat ihmisiä ja vastustavat hoitoa."

        http://www.sanasinko.net/viewtopic.php?p=5152#5152


      • "Kun törmäsin avaukseeni ja tuohon juttuun uudestaan, päätin alkaa kääntää sitä, on tuossa vaan sen verran painavaa kritiikkiä."

        - Jutusta on myös linkki tähän http://www.nutramed.com/Fungi/blastomycosis_story.htm ja siinäkin niin painavaa asiaa, että aloin kääntää sitäkin.


      • sanasinko kirjoitti:

        "Kun törmäsin avaukseeni ja tuohon juttuun uudestaan, päätin alkaa kääntää sitä, on tuossa vaan sen verran painavaa kritiikkiä."

        - Olipa aika urakka. Vaikeaa kääntää sujuvaksi suomeksi tarkkuutta menettämättä:

        http://www.sanasinko.net/viewtopic.php?p=5152#5152

        Kollegat kiistivät sieni-infektion olemassaolon.

        "Olipa aika urakka. Vaikeaa kääntää sujuvaksi suomeksi tarkkuutta menettämättä:

        http://www.sanasinko.net/viewtopic.php?p=5152#5152 "

        - Tuli hiottua vielä edellistä käännöstä ja sain puserrettua viimein tämänkin kuntoon:

        http://www.sanasinko.net/viewtopic.php?p=5247#5247


    • Ihantautinen

      Nämä väskyt ovat varmaan kaikki homeessa. Ainakin meilläpäin halpiskaupan vyö- ja laukkuosasto täytyy ohittaa nopeasti, jos meinaa välttyä huimaukselta.

    Ketjusta on poistettu 2 sääntöjenvastaista viestiä.

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